mamoru:

mamoru:

long haul covid is now largely being called PACS. post acute covid-19 syndrome.

some quick notes from the dysautonomia international conference about this, some things here may have been incorrectly written down because there was so much (register to learn more and get these presentations in full)

• between 10-50% (some studies say 30-50%, huge range) of people who get covid 19 will have PACS and/or chronic symptoms from covid-19. these are only estimates and many patients going on a year or more. these are chronic conditions without cures even from very mild covid-19 cases. the diagnosis of autonomic and autoimmune conditions took years prior to the pandemic and more accurate numbers will be a while
• many people notice start of symptoms ~4 weeks after infection
• there is autonomic involvement in most cases of PACS
• other viral conditions are associated with developing autonomic dysfunction such as sars and mers. POTS often has a viral trigger regardless of what it is
• covid 19 involves loss of brain matter
• age range is all across the board
• the most common autonomic diagnosis is POTS
• other common diagnoses include orthostatic intolerance, gastrointestinal disturbance
• even with extremely mild covid-19 infection, long term symptoms and chronic illness are common. and by long term, 6+ months. many people stop being able to work at all
• brain fog and memory problems are huge, potentially related to the loss of brain matter
• there is widespread tissue damage throughout the body from covid-19
• there is no diagnostic criteria for PACS yet
• statistics estimate there will be over 10 million people in the US with covid-19 related autonomic dysfunction
• all doctors should get autonomic training
• if you have dysautonomia and develop covid you will very likely get worse, they do not cancel out. get vaccinated
• there is an autoimmune aspect to PACS as well as to POTS, still being worked out. covid-19 may cause an autoimmune storm so to speak
• a diagnosis of POTS currently requires 6+ months of symptoms, so there will be many more diagnoses as time goes on
• there are not enough doctors to care for this influx of autonomic patients

there was a ton of cool information and this is only a snippet. register for the free dysautonomia international virtual conference for the entire presentations